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Qualitative study of patients with venous malformations: symptom experiences and content validity of patient-reported outcome measures.

Ryan W EnglandChristopher R BaileyMilena D AnatchkovaAnne M SkalickyMark H MeissnerMelvin RosenblattHeather L GelhornClifford R Weiss
Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2020)
These results suggest that several VM symptoms are not assessed fully by commonly used PRO measures, and that the relevance of functional limitation questions may vary by VM location.
Keyphrases
  • patient reported outcomes
  • mental health
  • sleep quality
  • physical activity
  • patient reported