A learning health network for pediatric liver transplantation: Inaugural meeting report from the Starzl Network for Excellence in Pediatric Transplantation.
James E SquiresBeth LoganAngela LortsHenrisa HaskellKristen SisaithongTony PillariJonathan SzolnaDarcy DoddRegino P Gonzalez-PeraltaKatelyn M SaarelaBeau KellyBeverly Kosmach-ParkSteven J LobrittoVicky Lee NgEmily R PeritoSara RasmussenRene RomeroEyal ShemeshHannah KarolakGeorge Vincent MazariegosPublished in: Pediatric transplantation (2019)
Learning Health Networks (LHN) improve the well-being of populations by aligning clinical care specialists, technology experts, patients and patient advocates, and other thought leaders for continuous improvement and seamless care delivery. A novel LHN focused on pediatric transplantation, the Starzl Network for Excellence in Pediatric Transplantation (SNEPT), convened its inaugural meeting in September 2018. Clinical care team representatives, patients, and patient families/advocates partnered to take part in educational sessions, pain point exercises, and project identification workshops. Participants discussed the global impact of transplant from both a population and individual perspective, identifying challenges and opportunities where the Starzl Network could work to improve outcomes at scale across a variety of transplant-related conditions.
Keyphrases
- healthcare
- quality improvement
- palliative care
- end stage renal disease
- ejection fraction
- newly diagnosed
- public health
- pain management
- prognostic factors
- type diabetes
- neuropathic pain
- health information
- patient reported outcomes
- metabolic syndrome
- spinal cord injury
- skeletal muscle
- mesenchymal stem cells
- patient reported
- high intensity
- weight loss
- resistance training
- insulin resistance