Cost-of-illness studies of inherited retinal diseases: a systematic review.
Qin Xiang NgClarence OngClyve Yu Leon YaowHwei Wuen ChanJulian ThumbooYi WangGerald Choon Huat KohPublished in: Orphanet journal of rare diseases (2024)
IRDs impose a disproportionate societal burden outside health systems. It is vital for continued funding into IRD research, and governments should incorporate societal costs in the evaluation of cost-effectiveness for forthcoming IRD interventions, including genomic testing and targeted therapies.