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"It's not who I am": Children's experiences of growing up with a long-term condition in England, Australia, and New Zealand.

Bernie CarterKaren FordLucy BrayTineke WaterJanine ArnottCassandra TichanowAnnette Dickinson
Published in: Journal for specialists in pediatric nursing : JSPN (2017)
Pediatric nurses should be aware of the importance that children with long-term conditions place on projecting and protecting their sense of being normal and ensure that when they engage with children that they take account of the children's understandings and efforts to live a life constrained but not limited by the condition.
Keyphrases
  • young adults
  • healthcare
  • quality improvement