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Whole Person, Whole Journey: Developing a Person-Centred Regional Dementia Strategy.

Paul StoleeJessica AshbourneJacobi ElliottSarah MainNicole HollandCole EdickCourtney RoppCatherine E TongSheila Bodemer
Published in: Canadian journal on aging = La revue canadienne du vieillissement (2020)
We present the development of a regional dementia strategy in Southwestern Ontario, Canada. We worked with stakeholders in a regional health authority to develop a dementia strategy. We conducted interviews with persons with dementia and their care partners (n = 26) and health care administrators and policy makers (n = 33); and administered a priority-setting survey (n = 64). Both participant groups identified provider compassion, professionalism, and care in the early stages of dementia as system strengths. Both groups also highlighted a need for more integration and coordination, a need for more person-centred care, support for care partners, and more flexibility in the provision and receipt of services. The highest-ranked priorities were improving care partner support, improving access to care, and improving system-wide quality. We integrate these strengths, needs, and priorities in a strategic framework, "Whole Person, Whole Journey". Organizations developing a dementia strategy may use this framework as a springboard for their own work.
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