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Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry.

Jeffrey A GlassbergElizabeth A LintonKatrina BursonTabitha HendershotJoseph TelfairJulie KanterVictor R GordeukAllison A KingCathy L MelvinNirmish ShahJane S HankinsAxel Yannick EpiéLynne D Richardsonnull null
Published in: Orphanet journal of rare diseases (2020)
The SCDIC Registry strives to provide an accurate, updated characterization of the adult and adolescent SCD population as well as standardized, validated data collecting tools to guide evidence-based research and practice.
Keyphrases
  • sickle cell disease
  • primary care
  • electronic health record
  • healthcare
  • big data
  • young adults
  • quality improvement
  • mental health
  • high resolution
  • childhood cancer
  • machine learning
  • deep learning
  • artificial intelligence