Rates, causes and predictors of all-cause and avoidable mortality in 163 686 children and young people with and without intellectual disabilities: a record linkage national cohort study.
Laura Anne Hughes-McCormackEwelina RydzewskaSally-Ann CooperMichael FlemingDaniel MackayKirsty DunnLaura WardFilip SosenkoFiona BarlowJenny MillerJoseph D SymondsBhautesh D JaniMaria TruesdaleDeborah CairnsJill PellAngela HendersonCraig MelvillePublished in: BMJ open (2022)
Children with intellectual disabilities had significantly higher rates of all-cause, avoidable, treatable and preventable mortality than their peers. The largest differences were for treatable mortality, particularly at ages 5-9 years. Interventions to improve healthcare to reduce treatable mortality should be a priority for children/young people with intellectual disabilities. Examples include improved epilepsy management and risk assessments, and coordinated multidisciplinary actions to reduce aspiration/reflux/choking and respiratory infection. This is necessary across all neighbourhoods.