Still Lost in Transition? Perspectives of Ongoing Cancer Survivorship Care Needs from Comprehensive Cancer Control Programs, Survivors, and Health Care Providers.
Leslie W RossJulie S TownsendElizabeth A RohanPublished in: International journal of environmental research and public health (2022)
Public health agencies have played a critical role in addressing the complex health and mental health needs of cancer survivors. We conducted a mixed-methods evaluation via a Web-based survey ( n = 51) and focus groups ( n = 11) with National Comprehensive Cancer Control Program (NCCCP) recipients and interviews ( n = 9) with survivors, health care providers (HCPs), and patient navigators to explore these audiences' cancer survivorship information needs and strategies to improve resource dissemination. Participants revealed a need for tailored resources and support for survivors on healthy lifestyle, post-treatment survivorship concerns, psychosocial health, and navigating the health system. HCP needs included education on survivorship care plans and care coordination to facilitate the transition between oncology and primary care. HCPs were survivors' most trusted source for information; however, participants noted difficulties engaging HCPs in survivorship care. These findings can help public health practitioners focus their efforts to better meet the needs of cancer survivors and their HCPs.
Keyphrases
- healthcare
- childhood cancer
- public health
- young adults
- quality improvement
- mental health
- papillary thyroid
- palliative care
- primary care
- squamous cell
- health information
- metabolic syndrome
- cardiovascular disease
- affordable care act
- clinical trial
- pain management
- case report
- single cell
- risk assessment
- study protocol
- health promotion
- mental illness
- human health