Preferences for Updates on General Research Results: A Survey of Participants in Genomic Research from Two Institutions.
Casey Overby TaylorNatalie Flaks ManovKatherine D CrewChunhua WengJohn J ConnollyChristopher G ChuteDaniel E FordHarold LehmannAlanna Kulchak RahmIftikhar J KulloPedro J CaraballoIngrid A HolmDebra MathewsPublished in: Journal of personalized medicine (2021)
Future studies may benefit from exploring preferences for research result updates, as we have in our study. In addition, this work provides evidence of a need for funders to incentivize researchers to communicate results to participants.
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