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Telephone health services in the field of rare diseases: a qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany.

Ana BabacMartin FrankFrédéric PauerSvenja LitzkendorfDaniel RosenfeldtVerena LührsLisa BiehlTobias HartzHolger StorfFranziska SchauerThomas O F WagnerJ-Matthias Graf von der Schulenburg
Published in: BMC health services research (2018)
Therefore, the need for a national rare diseases helpline was confirmed in this study. Due to limited financial resources, existing offers should be adapted in a stepwise procedure in accordance with the identified attributes.
Keyphrases
  • healthcare
  • end stage renal disease
  • chronic kidney disease
  • newly diagnosed
  • health insurance
  • health information
  • patient reported