Telephone health services in the field of rare diseases: a qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany.
Ana BabacMartin FrankFrédéric PauerSvenja LitzkendorfDaniel RosenfeldtVerena LührsLisa BiehlTobias HartzHolger StorfFranziska SchauerThomas O F WagnerJ-Matthias Graf von der SchulenburgPublished in: BMC health services research (2018)
Therefore, the need for a national rare diseases helpline was confirmed in this study. Due to limited financial resources, existing offers should be adapted in a stepwise procedure in accordance with the identified attributes.