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Life outcomes after paediatric kidney transplantation: a qualitative, biographical study in long-term survivors.

Valentin RitschlTanja Alexandra StammAxana SelzerFabian EibensteinerLukas KalteneggerErika MosorMaisa OmaraNatalie VachudaLisa SperlEva Katharina MaselChristoph AufrichtMichael Boehm
Published in: Archives of disease in childhood (2024)
The strong desire for normality confirms recent findings of the Standardised Outcomes in Nephrology Group initiative, which proposes survival and life participation as core outcomes in children with chronic kidney disease. Our study should be a starting point for an international effort to identify typologies and stratified interventions for children with ESKD and their families, particularly siblings.
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