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Evaluating the impact of a community-based parent training programme for children with cerebral palsy in Ghana.

Maria ZuurmondDavid O'BanionMelissa GladstoneSandra CarsamarMarko KeracMarjolein BaltussenCally J TannGifty Gyamah NyanteSarah Polack
Published in: PloS one (2018)
Children with cerebral palsy have complex care and support needs which in low and middle-income settings need to be met by their family. This study demonstrates that a participatory training, delivered through the establishment of a local support group, with an emphasis on caregiver empowerment, resulted in improved caregiver QoL. Despite less effect on effect on child health and no clear effect on nutritional status, this alone is an important outcome. Whilst further development of these programmes would be helpful, and is underway, there is clear need for wider scale-up of an intervention which provides support to families.
Keyphrases
  • children with cerebral palsy
  • palliative care
  • physical activity
  • clinical trial
  • affordable care act