A Study Design to Harmonize Patient-Reported Outcomes Across Data Sets.

Brittany Avin McKelvey Alexandra BerkLynda ChinStacie HudgensIan KudelRonan C O'HaganAmila PatelJulie ScottHillary S AndrewsSam WangDebra Wujcik Mark D Stewart Jeff D Allen

Published in: JCO clinical cancer informatics (2023)

This work provides considerations for harmonizing ePRO data sets and a common framework to align across multiple ePRO tools to assess the value of ePROs for improving patient outcomes. Future efforts to interpret evidence and evaluate the impact of ePRO tools on patient outcomes will be aided by improved alignment across studies.

Keyphrases

patient reported outcomes
electronic health record
big data
quality improvement
artificial intelligence