Friedreich's Ataxia-Health Index: Development and Validation of a Novel Disease-Specific Patient-Reported Outcome Measure.

Jamison SeaburySpencer RoseroAnika VarmaJennifer WeinsteinCharlotte EngebrechtNuran DilekJohn HeatwoleDanae AlexandrouBrittany CohenJane LarkindaleDavid R LynchCourtney ParkSub H SubramonyEllen WagnerSusan WaltherMcKenzie WellsChristine ZizziChad Heatwole

Published in: Neurology. Clinical practice (2023)

Initial evaluation of the FA-HI supports its validity and reliability as a PRO for assessing how individuals with FA feel and function.

Keyphrases

patient reported outcomes
public health
healthcare
mental health
health information
anti inflammatory
risk assessment
human health