Empowering Young People Living With Juvenile Idiopathic Arthritis to Better Communicate With Families and Care Teams: Content Analysis of Semistructured Interviews.
Stuart W GrandeMeghan R LongacreKarin PalmbladMeera V MontanRikard Palmer BergquistAndreas HagerGreg KotzbauerPublished in: JMIR mHealth and uHealth (2019)
A human-centered mPSS design that offers JIA patients the ability to track personally relevant illness concerns and needs can enhance communication, generate consensus-based treatment decisions, and improve efficiency and personalization of care. Technology that supports continuous learning and promotes better understanding of disease management may reduce practice burden while increasing patient engagement and autonomy in fostering lasting treatment decisions and ultimately supporting personalized care and improving outcomes.
Keyphrases
- juvenile idiopathic arthritis
- healthcare
- quality improvement
- palliative care
- end stage renal disease
- endothelial cells
- primary care
- chronic kidney disease
- affordable care act
- ejection fraction
- type diabetes
- combination therapy
- skeletal muscle
- case report
- systemic lupus erythematosus
- peritoneal dialysis
- replacement therapy
- disease activity
- risk factors
- patient reported outcomes