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Young carers' perspectives on navigating the healthcare system and co-designing support for their caring roles: a mixed-methods qualitative study.

Marianne SaragosaShoshana Hahn-GoldbergYona LunskyJill I CameronIsabelle CavenSusan Bookey-BassettKristine NewmanKaren Okrainec
Published in: BMJ open (2023)
Study findings revealed the critical role that YCs play when supporting their families during pivotal interactions in the healthcare system. Like their older caregiver counterparts, YCs struggle to navigate, coordinate and advocate for their family members while juggling their needs as they transition from adolescence to adulthood. This study provides important preliminary insights into YCs encountering professionals, which can be used to design and implement national support structures.
Keyphrases
  • physical activity
  • single cell
  • middle aged
  • high resolution
  • quality improvement
  • early life