Exploring patient's experience and unmet needs on pregnancy and family planning in rare and complex connective tissue diseases: a narrative medicine approach.
Diana MarinelloDina ZucchiIlaria PallaSilvia AguileraIlaria GalettiMonica HolmnerSilvia SandulescuLucy ScarleDalila TremariasCoralie BouillotLaura CattaneoAndrea GagliotiSimone TicciatiAntonio BrucatoMunther KhamashtaYehuda ShoenfeldAngela TincaniRosaria TalaricoChiara TaniMarta MoscaPublished in: RMD open (2023)
The adoption of the NBM approach enabled a direct identification of unmet needs, and a list of possible actions was elaborated to improve the care of rCTD patients and their families in future initiatives.