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Comparison of the CHU-9D and the EQ-5D-Y instruments in children and young people with cerebral palsy: a cross-sectional study.

Jennifer M RyanEllen McKayNana AnokyeMarika NoorkoivNicola TheisGrace Lavelle
Published in: BMJ open (2020)
The EQ-5D-Y and CHU-9D are feasible measures of HRQoL in CYP with CP. However, the two instruments demonstrate poor agreement and should not be used to measure and value HRQoL in CYP with CP interchangeably. We propose that the CHU-9D may be preferable to use in this population as it assesses concepts that influence HRQoL among CYP with CP and provides less extreme utility values than the EQ-5D-Y.
Keyphrases
  • cerebral palsy
  • young adults
  • patient reported outcomes
  • physical activity
  • climate change
  • risk factors