Facilitators and barriers to co-research by people with dementia and academic researchers: Findings from a qualitative study.
Jacob WaiteFiona PolandGeorgina CharlesworthPublished in: Health expectations : an international journal of public participation in health care and health policy (2019)
Findings both replicate and extend previous knowledge on PPI in dementia. Cognitive capacity of potential co-researchers with dementia is only a part of the picture, with attitudes and expectations of researchers, gatekeepers and people with dementia also forming barriers. Researcher education, adequate resourcing, and both creativity and flexibility are needed to support recruitment of co-researchers with dementia and to enable meaningful co-research.