Health-care practitioners' preferences for the return of secondary findings from next-generation sequencing: a discrete choice experiment.
Shan JiangAslam H AnisIan CromwellTima MohammadiKasmintan A SchraderJanet LucasChristine M ArmourMarc ClausenYvonne BombardDeirdre WeymannPublished in: Genetics in medicine : official journal of the American College of Medical Genetics (2020)
This study identified factors that influence WTSR of SFs and indicates that HCPs make tradeoffs between patient preference and other outcome characteristics. The results can inform clinical scenarios and models aiming to understand shared decision-making, patient and family opportunity to benefit, and cost-effectiveness.