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Development of a Web-Based Resource for Parents of Young Children Newly Diagnosed With Autism: Participatory Research Design.

Aspasia Stacey RabbaCheryl DissanayakeJosephine Barbaro
Published in: JMIR pediatrics and parenting (2020)
The development of the Pathways Beyond Diagnosis website using PAR ensures that families have ready access to practical and evidence-based information following a young child's diagnosis. The website guides families to access relevant, reputable, and evidence-based information in addition to summarizing key challenges encountered after diagnosis (ie, grief, sharing the diagnosis) and the importance of self-care.
Keyphrases
  • newly diagnosed
  • health information
  • autism spectrum disorder
  • mental health
  • social media