"I'd like more options!": Interviews to explore young people and family decision-making needs for pain management in juvenile idiopathic arthritis.

Karine Toupin AprilIsabelle GabouryLaurie ProulxAdam M HuberCiarán M DuffyEsi M MorganLinda C LiElizabeth StringerMark ConnellyJennifer E WeissMichele GibbonHannah SachsAditi SivakumarAlexandra SiroisEmily SirotichNatasha TrehanNaomi AbrahamsJanice S CohenSabrina CavalloTania El HindiMarco RagusaFrance LégaréWilliam B BrinkmanPaul R FortinSimon DécaryRebecca LeeSabrina GmucaGail PatersonPeter TugwellJennifer N Stinson

Published in: Pediatric rheumatology online journal (2023)

Findings suggest a need for evidence-based information and communication about pain management options, which would be addressed by decision support interventions and HCP training in pain and SDM. Work is underway to develop such interventions and implement them into practice to improve pain management in JIA and in turn lead to better health outcomes.

Keyphrases

pain management
juvenile idiopathic arthritis
chronic pain
decision making
physical activity
disease activity
primary care
healthcare
rheumatoid arthritis
systemic lupus erythematosus
spinal cord injury