HIV and the right not to know.
Jonathan YoungsJoshua SimmondsPublished in: Journal of medical ethics (2015)
It is a tenet of the prevailing ethic in medicine that competent adults have the 'right to know' information necessary to make informed decisions about their healthcare. Whether there is a 'right not to know' unwanted information is more hotly debated. When deciding whether or not to override a competent adult's desire not to know his/her HIV result, a desire to respect patient autonomy can be seen to pull in both directions. We thus conclude that there is not a very strong presumption on the side of non-disclosure but rather the adult's interest in not knowing must be weighed against the potential harms and benefits of disclosure for both the individual and others. This does not, however, negate the fact that patients retain a right to refuse an HIV test and this is so even where issues of bodily integrity are not at stake. This implies that explicit consent should still be sought for HIV testing, at least where there is some possibility that the patient may refuse, or want more information, if given the chance.
Keyphrases
- hiv testing
- men who have sex with men
- hiv positive
- antiretroviral therapy
- healthcare
- hiv infected
- end stage renal disease
- human immunodeficiency virus
- health information
- case report
- hepatitis c virus
- ejection fraction
- chronic kidney disease
- hiv aids
- newly diagnosed
- peritoneal dialysis
- south africa
- social media
- patient reported outcomes