A Conceptual Thematic Framework of Psychological Adjustment in Caregivers of Children with Craniofacial Microsomia.
Nicola Marie StockBruna CostaJade ParnellAlexis L JohnsCanice E CrerandKristin J Billaud FeragenLaura P StueckleAngela MillsLeanne MageeMatthew T HottonMelissa TumblinAmy ScheferAmelia F DrakeCarrie L HeikePublished in: The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association (2024)
Narrative interviews provided rich insight into caregivers' experiences of having a child with CFM and enabled the development of a conceptual thematic framework to guide clinical care and future research. Information gathered from this study demonstrates the need to incorporate evidence-based psychological support for families into the CFM pathway from birth onward.