Experiences of children and adolescents living with achondroplasia and their caregivers.

Renée ShediacOlga MoshkovichHeather GerouldRachel BallingerAgnes WilliamsM Alex BellengerJennifer QuinnJulie Hoover-FongKlaus MohnikeRavi SavarirayanDominique Kelly

Published in: Molecular genetics & genomic medicine (2022)

These findings underscore the importance of regular assessments of HRQoL and the provision of psychosocial support to affected children and families.

Keyphrases

palliative care
mental health
young adults