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Identifying Profiles and Symptoms of Patients With Long COVID in France: Data Mining Infodemiology Study Based on Social Media.

Amélia DeguilhemJoelle MalaabManissa TalmatkadiSimon RennerPierre FoulquiéGuy FagherazziPaul LoussikianTom MartyAdel MebarkiNathalie TexierStéphane Schuck
Published in: JMIR infodemiology (2022)
Long COVID is a lingering condition that affects people worldwide, physically and psychologically. It impacts Long Haulers' quality of life, everyday tasks, and professional activities. Social media played an undeniable role in raising and delivering Long Haulers' voices and can potentially rapidly provide large volumes of valuable patient-reported information. Since long COVID was a self-titled condition by patients themselves via social media, it is imperative to continuously include their perspectives in related research. Our results can help design patient-centric instruments to be further used in clinical practice to better capture meaningful dimensions of long COVID.
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