Development of a core outcome set for quality of life for adults with drug-resistant epilepsy: A multistakeholder Delphi consensus study.
Sharon ChiangRobert MossJohn M SternInna HughesS Andrew JosephsonJennifer R PearceBrandon E KopaldAnup D PatelVikram R RaoPublished in: Epilepsia (2022)
Using patient-centered Delphi methodology, this study defines the first COS for QOL measurement in clinical practice for adults with drug-resistant epilepsy. This set highlights the diversity of factors beyond seizure frequency and severity that impact QOL in epilepsy.