Health-related quality scores in childhood interstitial lung disease: Good agreement between patient and caregiver reports.

Matthias Griese Nicolaus Schwerk Julia Carlens Martin Wetzke Nagehan Emiralioğlu Emine Nural Kiper Honorata Marczak Joanna Lange Katarzyna Krenke Nicola Ullmann Dora Krikovszky Susanne Hämmerling Holger Kösternull nullElias Seidl

Published in: Pediatric pulmonology (2024)

We found a good agreement between children- and caregiver-related HrQoL scores. In chILD, caregivers are able to sense changes in children's HrQoL scores over time and may be used as a proxy for children unable to complete HrQoL questionnaires.

Keyphrases

interstitial lung disease
young adults
systemic sclerosis
rheumatoid arthritis
mental health
palliative care
idiopathic pulmonary fibrosis
quality improvement
drug induced
psychometric properties