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Does talking about end of life with adults with intellectual disability cause emotional discomfort or psychological harm?

Roger J StancliffeMichele Y WieseSue ReadGail JeltesRebecca BartonJosephine M Clayton
Published in: Journal of applied research in intellectual disabilities : JARID (2020)
This is the first controlled, longitudinal study providing robust evidence about whether discussing end of life leads to emotional discomfort or psychological harm. Data showed adults with intellectual disability can safely engage in conversations/activities about end of life. The high percentage of participant-initiated encounters showed participants wanted to talk about end of life.
Keyphrases
  • intellectual disability
  • autism spectrum disorder
  • electronic health record
  • sleep quality
  • advance care planning
  • deep learning