ClinicalTrials.gov as a Source of Information About Expanded Access Programs: Cohort Study.
Jan BorysowskiAndrzej GórskiPublished in: Journal of medical Internet research (2021)
Currently, CT.gov is a quite fragmentary source of data on expanded access programs. This problem is important because CT.gov is the only publicly available primary source of information about specific programs. We suggest the actions that should be taken by different stakeholders to fully exploit this register as a source of information about expanded access.