Patient, Caregiver, and Provider Perspectives on Challenges and Solutions to Individualization of Care in Hemodialysis: A Qualitative Study.
Rachelle SassJuli FinlayKrista RossumKaytlynn V SorokaMichael McCormickArlene DesjarlaisHans VorsterGeorge FontainePriscila Ferreira Da SilvaMatthew Thomas JamesManish M SoodAllison TongNeesh PannuKarthik TennankoreStephanie ThompsonMarcello TonelliClara J BohmPublished in: Canadian journal of kidney health and disease (2020)
Participants identified challenges to individualization of in-center HD care, primarily regarding patient comfort and safety during HD sessions, affordable and reliable transportation to and from HD sessions, increased financial burden as a result of changes in functional and employment status with HD, individualization of treatment goals, and flexibility in treatment schedule and self-care. These findings will inform future studies aimed at improving patient-centered HD care.