Exploring the Experiences of Cancer Patients With Chemotherapy-Induced Ototoxicity: Qualitative Study Using Online Health Care Forums.
Stephanie E PearsonJohn TaylorDerek James HoarePoulam Manubhai PatelDavid M BaguleyPublished in: JMIR cancer (2019)
There was a significant number of reports expressing concerns about the lack of information on the risk of ototoxicity. More support for those suffering is needed; for example, improved interdepartmental communication between oncology and audiology services could optimize patient care. Patients should also be encouraged to communicate with their health care professionals about their ototoxicity and relay how their QoL is impacted by ototoxicity when accessing support. Tinnitus was the most common concern and was associated with distress. Hearing loss was less common; however, it was associated with fear and employment issues. Those who reported preexisting conditions were fearful about worsening their condition as their QoL was already impacted.
Keyphrases
- healthcare
- hearing loss
- end stage renal disease
- chemotherapy induced
- health information
- ejection fraction
- mental health
- newly diagnosed
- chronic kidney disease
- peritoneal dialysis
- primary care
- palliative care
- prognostic factors
- social media
- emergency department
- systematic review
- patient reported outcomes
- mental illness
- affordable care act