[Germany-wide, Web-based ParaReg Registry for Lifelong Monitoring of People with Spinal Cord Injury: Data Model, Ethico-legal Prerequisites and Technical Implementation].

Rϋediger RuppPatrick JerschChristian SchuldJoachim SchweidlerNils-Hendrik BenningPetra Knaup-GregoriMirko AachAndreas BadkeAndreas HildesheimDoris MaierNorbert WeidnerMarion Saur

Published in: Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) (2021)

After completion of the monocentric alpha test phase, the multicenter data acquisition was started in 5 DMGP-SCI centers. The sustainability of ParaReg is ensured by the structural and financial support of the DMGP after expiry of the funding by the German Federal Ministry of Education and Research (BMBF).

Keyphrases

electronic health record
healthcare
quality improvement
big data
primary care
spinal cord injury
clinical trial
data analysis