iscorEB-p: A patient-reported outcome measure for Epidermolysis bullosa. Psychometric properties of the Patient Score from the Instrument for Scoring Clinical Outcome of Research for EB.
Gudrun SalamonSophie StroblUrsula Field-WernersAnja DiemAgnes Schwieger-BrielElena PopePublished in: The British journal of dermatology (2024)
In conclusion, the iscorEB-p is a reliable and valid instrument to assess the patient-reported view on the health status of EB patients.