"I remember how I felt, but I don't remember the gene": Families' experiences of cancer-related genetic testing in childhood.

Brittany C McGillClaire E WakefieldJanine VetschQishan LimMeera WarbyAlison MetcalfeJennifer A ByrneRichard J CohnKatherine M Tucker

Published in: Pediatric blood & cancer (2019)

We conclude that the successful integration of cancer genetics into pediatric cancer care requires specialist pediatric genetic counseling and psychosocial support services that are able to respond to families' changing needs.

Keyphrases

genome wide identification
mental health
childhood cancer
papillary thyroid
healthcare
primary care
palliative care
genome wide
squamous cell
young adults
copy number
smoking cessation
dna methylation
hepatitis c virus
antiretroviral therapy
hiv infected
genome wide analysis