Identifying project topics and requirements in a citizen science project in rare diseases: a participative study.

Michaela C NeffHolger StorfJessica VasseurJörg ScheidtThomas ZerrAndreas KhouriJannik Schaaf

Published in: Orphanet journal of rare diseases (2022)

Qualitative, citizen science research can be used to collectively identify stakeholder needs, project topics and requirements for a digital application in specific areas, such as rare diseases.

Keyphrases

quality improvement
public health
systematic review