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Impact of the COVID-19 pandemic on the care of rare and undiagnosed diseases patients in France: a longitudinal population-based study.

Louis SoussandMathieu KuchenbuchClaude MessiaenArnaud SandrinAnne-Sophie JannotRima Nabbout
Published in: Orphanet journal of rare diseases (2022)
Although telehealth was quickly introduced during the COVID-19 pandemic, RUD patient care was strongly affected in France with a decline in the number of patients treated and new patients recruited. This is likely to result in delays in patient diagnosis and care over the next few years.
Keyphrases
  • end stage renal disease
  • ejection fraction
  • chronic kidney disease
  • newly diagnosed
  • healthcare
  • palliative care
  • peritoneal dialysis
  • prognostic factors
  • case report
  • pain management