Involving patients as research partners in research in rheumatology: a literature review in 2023.
Muriel ElhaiDiego BenaventKrystel AouadPaul StudenicHeidi BertheussenJette PrimdahlCodruta ZabalanMaarten P T de WitLaure GossecPublished in: RMD open (2023)
Despite a worldwide movement advocating for increased patient involvement in research, PRPs in translational research and RCTs in rheumatology are significantly under-represented. This limited involvement of PRPs in research highlights a persistent gap between the existing recommendations and actual practice.