Stakeholder Perspectives on Returning Nonactionable Apolipoprotein L1 (APOL1) Genetic Results to African American Research Participants.

Kathleen McGlone WestKerri L CavanaughErika BlacksherStephanie M FullertonEbele M UmeukejeBessie YoungWylie Burke

Published in: Journal of empirical research on human research ethics : JERHRE (2021)

APOL1 results should be offered to participants. Responsibly fulfilling this offer requires careful identification of best communication practices, broader education about the topic, and ongoing community engagement.

Keyphrases

african american
healthcare
primary care
mental health
social media
genome wide
quality improvement
copy number
bioinformatics analysis
gene expression