Login / Signup

Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference: content analysis of interviews.

Amanda WurzKelsey EllisJulia NordlundMarie-Eve CarrierVanessa CookAmy GietzenClaire AdamsElsa-Lynn NassarDanielle B RiceCatherine FortuneGenevieve GuillotTracy MieszczakMichelle RichardMaureen SauveBrett D Thombs
Published in: Research involvement and engagement (2024)
Findings from this study suggest that the co-presenting experience was a rewarding and enjoyable way to tailor research dissemination to patients. We identified a patient-centred approach and meaningful and prolonged patient engagement as essential elements underlying co-presenting success.
Keyphrases
  • case report
  • systemic sclerosis
  • newly diagnosed
  • mental health
  • idiopathic pulmonary fibrosis