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Accessibility of information on patients' and family members' end-of-life wishes in advance care planning.

Anne KuusistoKaija SarantoPäivi KorhonenElina Haavisto
Published in: Nursing open (2021)
Two main categories emerged. Patients' and family members' end-of-life wishes documentation in relation to changing information needs was described in relation to patients' condition and care context. Transfer of patients' and family members' end-of-life wishes to palliative care unit included written and verbal communication. Results showed lack of implementation of ACP early, lack of implementation about the holistic interpretation of ACP into medical notes and lack of transferability of ACP into documenting systems impacting on accessibility and realization for the patient and family members at the end-of-life.
Keyphrases
  • end stage renal disease
  • healthcare
  • newly diagnosed
  • ejection fraction
  • chronic kidney disease
  • prognostic factors
  • peritoneal dialysis
  • primary care
  • quality improvement
  • advance care planning
  • health information