Login / Signup

Patient engagement in a national research network: barriers, facilitators, and impacts.

Miriam GonzalezTatiana OgourtsovaAlix ZerboCorinne LalondeAmy SpurwayFrank GavinKeiko ShikakoJonathan A WeissAnnette Majnemer
Published in: Research involvement and engagement (2023)
Our findings provide evidence of the positive impacts of patient engagement and highlight factors that are important to consider in supporting engagement in large research teams or networks. Based on these findings and in collaboration with patient-partners, we have identified strategies for enhancing authentic engagement of patient-partners in these contexts.
Keyphrases
  • case report
  • social media
  • antiretroviral therapy