Perception of Polish patients with cancer of the ethical and legal issues related to biobank research.

Jan Domaradzki Justyna Czekajewska Dariusz Walkowiak

Published in: The oncologist (2024)

Since biobanks generate ethical and legal issues related to informed consent, data protection and storage, as well as the sharing of biosamples, tissue ownership, and profit sharing, that may discourage patients from donation, when asking a patient for a donation, healthcare professionals should communicate in a donor-centered manner and address patients' ethical and moral concerns related to donation and offer resources to help manage these concerns.

Keyphrases

end stage renal disease
ejection fraction
newly diagnosed
chronic kidney disease
peritoneal dialysis
prognostic factors
decision making
healthcare
patient reported outcomes
health information
machine learning