An uncertain uphill battle - experiences and consequences of living with lipedema.
Johan DahlbergElisabet NylanderMargareta PerssonAlexander ShayestehPublished in: International journal of qualitative studies on health and well-being (2023)
Symptoms and restrictions caused by lipedema affect women's livelihood and future, as there are no indications for disease improvement. Preventive work aimed at reducing health deterioration should be a priority. More research is needed to raise healthcare awareness regarding difficulties experienced by patients with lipedema.