Login / Signup

Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study.

Stefanie WittMichaela Dellenmark-BlomSusanne KuckuckJens DingemannKate AbrahamssonCarmen DingemannJohn Eric ChaplinBenno UreMonika BullingerVladimir GatzinskyLinus JönssonJulia Hannah Quitmann
Published in: Orphanet journal of rare diseases (2021)
The parent-child agreement is mostly good, suggesting that parent-reports are a reliable source of information. However, discrepancies may occur and can be explained by the child's age, gender, and country (Sweden vs. Germany). Both perspectives are essential sources for treating EA patients and should not be considered right or wrong. Instead, this information broadens the perspective on pediatric EA patients.
Keyphrases
  • end stage renal disease
  • ejection fraction
  • newly diagnosed
  • chronic kidney disease
  • mental health
  • prognostic factors
  • patient reported outcomes
  • drinking water