Temporal Trends in Acute Adrenal Insufficiency Events in Children With Congenital Adrenal Hyperplasia During 2019-2022.
Xanthippi TseretopoulouSalma R AliJillian BryceNadia AminNavoda AtapattuTania A S S BachegaFederico BaronioRita OrtolanoNiels H BirkebaekWalter BonfigMartine CoolsJustin Huw DaviesTessy ThomasLiat de VriesHeba ElsedfyNermine H AmrChrista E FlueckEvgenia GlobaTulay GuranZehra Yavas-AbaliAyla GuvenSabine E HannemaVioleta IotovaDaniel KonradNina Lenherr-TaubeNils P KroneSofia Leka-EmiriElpis-Athina VlachopapadopoulouCorina LichiardopolOtilia MargineanRenata MarkosyanUta NeumannMarek NiedzielaMagdalena Banaszak-ZiemskaFranziska Phan-HugSukran PoyrazogluUrsina Probst-ScheideggerTabitha RandellGianni RussoMaria Carolina SalernoSumudu SeneviratneMargarett ShnorhavorianAjay ThankamonyRieko Tadokoro-CurraroErica van den AkkerJudith van EckAna VieitesMalgorzata WasniewskaSyed Faisal AhmedPublished in: Journal of the Endocrine Society (2024)
The I-CAH Registry can be used for targeted monitoring of important clinical benchmarks in CAH. However, changes in reported benchmarks need careful interpretation and longer-term monitoring.