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Creating a pediatric advisory board for engaging youth in pediatric health research: A case study.

Minerva A OrellanaMiguel Valdez SotoTabetha A BrockmanJoyce Joy E Balls-BerryMaria Guadalupe Zavala RochaMegan A AllyseKaren N D'SouzaKirsten A RigganYoung J JuhnChristi A Patten
Published in: Journal of clinical and translational science (2021)
Youth are an understudied population requiring additional safeguards when participating in research. Their input is necessary to facilitate participation and interest in studies. To address this, Mayo Clinic established one of the first pediatric advisory boards (PAB) comprised of 18 diverse youth aged 11-17. The PAB members participated in quarterly meetings (in person and then by video conference with the advent of COVID-19) where they provided feedback to researchers on recruitment strategies, study materials, and procedures. The PAB meetings fostered bidirectional conversations with researchers on several health research topics, including mental health. Youth advisory boards can promote engagement in pediatric research.
Keyphrases
  • mental health
  • physical activity
  • young adults
  • coronavirus disease
  • social media
  • mental illness