How to customize common data models for rare diseases: an OMOP-based implementation and lessons learned.
Najia AhmadiMichele ZochOya GuengoezeCarlo FacchinelloAntonia MondorfKatharina StratmannKhader MuslehHans-Peter ErasmusJana TchertovRichard GeblerJannik SchaafLena S FrischenAzadeh NasirianJiabin DaiElisa HenkeDouglas TremblayAndrew SrisuwananukornMartin BornhäuserChristoph RölligJan-Niklas EckardtJan Moritz MiddekeMarkus WolfienMartin SedlmayrPublished in: Orphanet journal of rare diseases (2024)
The customized data structure related to our RD-CDM can be used to perform multi-center studies to test data-driven hypotheses on a larger scale and take advantage of the analytical tools offered by the OHDSI community.