Health Following Recovery from Immune Thrombotic Thrombocytopenic Purpura: The Patient's Perspective.
Rachel A KelleyMarshall K CheneyClare M MartinSpero R CatalandLauren B QuickSan KellerSara K VeselyAmanda J LlanezaMohamad KhawandanahJanna JourneycakeJulie A PanepintoDeirdra R TerrellPublished in: Blood advances (2022)
Although hematologists pronounce patients as recovered, iTTP remains a life-changing event. Patients often did not return to their previous functioning; relationships and their careers were affected. However, patients may forget to discuss these concerns with their hematologist. To improve remission care, hematologists should incorporate patient-reported outcome measures evaluating these symptoms in remission visits.