Communication and cognitive impairments and health care decision making in MND: A narrative review.
Camille PaynterMadeline CruiceSusan MathersHeidi GregoryAdam P VogelPublished in: Journal of evaluation in clinical practice (2019)
This review highlights that the current body of literature exploring decision making within the MND population presents us with extremely limited insights into the impact of communication and/or cognitive impairments on health care decision making. Extant literature focuses on interventions (namely, ventilation and gastrostomy), the broad process of decision making, or cognitive assessment of decision-making ability. Whilst most studies acknowledge that deficits in communication or cognition impact the decision-making process, this issue is not the focus of any study.